Visit from Wide Bay Health

Another great May peer group meeting today with the Stand By Me crew! We had community members living with disabilities, carers, four representatives from Wide Bay Health, and local parents who recently lost their beautiful daughter all come together to discuss critical questions:

What do we do in an emergency?

What should we take to the hospital?

This diverse group brought together unique perspectives and experiences, fostering a collaborative and supportive environment to address these important issues.

It was a very informative session for everyone. We can’t change the past but we can share our experiences with hope to change the future. We’re at the brink of having a Disability Action Plan put in place to assist medical professionals care for people who live with disabilities and we’ve been lucky enough to liaise with Natalie Rice and Peter Nell about it & give them our feedback. 

We all had Nurse Navigators Gillian and Sarah there and it was a great opportunity to sit at the same table and share our views and experiences, and vice versa. 

We were so blessed to have Phil and Sam come along and share their invaluable knowledge with us today. Below you’ll find the suggested lists on what to give to Paramedics and what to take to hospital. 

Wide Bay Health Visit

In the Event of an Emergency

  • Have a dot point list of essential information
  • Name and DOB
  • Any Medical Conditions
  • List of current Medications (generic and real name)
  • Point of Contact (who they should contact)
  • Type of Diet (Eg, Peg fed, etc)
  • List of known Allergies
  • Sensory Needs
  • Communication Methods (allow time to reply, sign lagnuage, etc)
  • Known Triggers
  • Keep it short and concise
  • Give this list to the paramedics

What to take to Hospital

  • You never know how long you will be in the hospital, so pack enough for at least 24 hours
  • Depending on your personal circumstances, things you may need are:
  • Any medications that you are on
  • Any necessary incontinence supplies
  • Sanitary Supplies
  • Phone Charger
  • Headphones
  • Sensory Items
  • If Peg Fed - take spare tubes, etc. Just because it's a hospital, doesn't mean they'll have what you need
  • Toiletries
  • Footware

While your in Hospital

  • Make sure your GP details are up to date in the Hospital Records
  • Talk to the staff about what to expect in "worse case scenario"
  • If you are caring or your person ie changing aides, assisting with transferring, calming etc please be sure that the medical staff document it. This helps to ensure that there's sufficient staff.

As the Stand by Me Project has come to an end, we’ve decided to keep having monthly meetings so that our group continues to build friendships and have support from their peers. We will be meeting on the first Tuesday of the month in a room at a local service provider (Life Choice). 

We’ve made a real connection with one another and want to keep that connection and support going. It’s especially important in regional areas as we have very little support, especially for carers.

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